You can probably guess what this post is going to be about and you’re not wrong, at least not totally.
I admire what the Ice Bucket Challenge has done to bring awareness to ALS. However I am completely and utterly over seeing videos over take my social media feeds.
I’d don’t have objections to “fundraising stunts,” I really don’t. Anyone who has ever been involved in soliciting donations knows anything that can get money (and attention) is good, almost.
I know funds from ALS research are at an all-time high. I’m not going to try and tell you that I have a problem with that, because I don’t (you’d have to be a certifiable loon to have a problem with raising money for underfunded research).
However the whole thing seems so backwards to me.
The object is to NOT want to pour ice water over your head. Therefore you donate money.
Your F@cebook feed SHOULDN’T fill up with videos of people dumping ice all over themselves.
Well apparently not.
There’s also the issue of ALS awareness, as in, what ALS actually is.
It, like CP, is greatly misunderstood.
(What is it about neuro –muscular conditions? It feels like “misunderstanding” is part of the conditions themselves.)
While I’m not the biggest fan of disability simulations on the whole I think any fundraising “stunt” should bring awareness to the actual condition. ALS does not make you cold as ice/ice water. It does however rob a person of any and all muscle usage.
I should also tell you that the (F)JV that’s still alive and well inside me has a real problem with wasting water, especially when areas of the country are experiencing severe drought. It’s probably not as drastic as one of those “cutting off the nose to spite the face” deals, but I think you get where I’m going with this, if not just think about it for a while.
I have watched (and posted) few ice bucket challenge videos (or relevant posts) so I’m not entirely blame free here. So watch Father Kyle Sanders’ video & read Maria Johnson’s post if you want to know what I consider “cream of the crop” of all this mess.
I’ve heard rumblings of wanting to do “ice bucket challenges” for other illnesses/conditions. While it’s tempting to “strike while the iron is hot” there’s also the danger of “fundraising fatigue,” not to mention lacking originality and creativity.
Save your ice water and buckets for summertime fun, putting out actual fires, or gardening.
Get out the checkbook (or debit card) and give your money, and better yet, your companionship.