I Want My (CP) TV

This month I’m participating in WEGO Health’s Health Activist Writer’s Month Challenge.

I’ve often been told that my life should be a TV show. It’s hard to think of a TV show that compares to my life (there’s also the small fact that the TV provides more background noise than entertainment these days). Unless it’s Dallas, and let me just take a moment to thank God that my life is nothing like Dallas. I wouldn’t mind if my life were like Sullivan & Son, at least for a short period of time; I have a feeling that even that would get old quick.

Now that we have Push Girls I wonder what the future of television is going to look like. Or more accurately I wonder how long it’s going to be before television becomes more inclusive. I know there’s been talk of wanting to see another disability represented on Push Girls, and as nice as that would be I’d rather not stop there.

I’m not saying that I’d be for a “CP only” show either.

I will tell you though people with CP are some of the funniest people you’ll ever meet (see: Mike Berkson, for example).

It’s a complicated subject I can’t adequately express my thoughts at this very moment (but Push Girls is the closest thing out there, reality of scripted).

As for a TV show where my CP (&/or I) were the main subject?

I’d be pretty boring, or terrifying, depending on your feelings about surprise medical procedures.

At most you could probably get a few specials out of my life, and they’d probably have the lowest ratings ever (not to mention the editing that’d probably be necessary since there’s a very small filter holding my brain and mouth together).

As entertaining as people think I am (& tell me about it), I’m not nearly as entertaining as some of my family members. Not by a long shot. So turning the camera on my family would be much more interesting, like a K@rdashian/Chr!sley/W@hlberg combination. (Basically a whole lot of “What are they doing?”)

As much as I say I wouldn’t want to be the subject of a reality show I don’t think I’d mind as much if I was part of an ensemble (especially if it were my family). They’re all entertaining enough that all I’d have to do is sit back and throw in a comment here and there to prove I’m actually part of the family.

So tell me, would you want to see a “CP-centered” show on TV?

Tag! CP’s It

This month I’m participating in WEGO Health’s Health Activist Writer’s Month Challenge.

The prompt for today is to write a tagline for Cerebral Palsy.

I’m not prone to coming up with catchy things on my own. Anything that’s catchy that’s ever come out of my mouth is completely off the cuff, so much so that I don’t even realize what I’ve said until it’s out of my mouth and people are laughing (or not).

One of the best things about HAWMC happening after CP awareness month is that I have all sorts of material from CP awareness month to “pull from” for CP activism that’s already been “community approved.”

One of the more memorable CP slogans for this year has to come from across the world. I noticed it mostly on Australian websites, I’m not sure if it caught on anywhere else.

“Get ballsy for Cerebral Palsy.”

I have to admit this one had to grow on me a little, but it is creative. I wouldn’t really want it to spread everywhere. It’s one of those “use smartly & sparingly” type sayings if it’s really going to help make a difference.

The Reaching For The Stars Foundation had a few good banners for people to use on social media during March as well.

This was my favorite of that bunch:


If you were to think of a tagline for CP what would it be?

The Curious Case Of CP’s Misconceptions

This month I’m participating in WEGO Health’s Health Activist Writer’s Month Challenge.

There are numerous misconceptions about Cerebral Palsy. Some of them just won’t die off (like an infestation of cockroaches), while others seem to evolve into “newer” misconceptions.

It’s enough to not only drive you nuts, but question the sanity of the human race as a whole.

There’s only so long someone can be asked, “Are you retarded?” before the benefit of the doubt goes flying out the window.

Rather than continuing to beat the dead horse (this time), I’m going to turn things over to John W. Quinn, the author of Someone Like Me. I’ve found it helps to make a stronger case if you have others back you up :)

These Are A Few Of My Favorite Things

This month I’m participating in WEGO Health’s Health Activist Writer’s Month Challenge.

I thought this prompt was a repeat of next year. It turns out I was right, sort of, consider this an update.

What I Love:
Telecommuting: I’d basically have no academic career without it. I wouldn’t even have thought of restarting my academics without it. I wouldn’t have stated my own business either.

Camera Phones: At one point in life I considered myself to be a budding photographer; back when you had to carry around a camera and find a good place to develop black and white (and consider having a personal darkroom). I don’t want to be a photographer anymore; which is probably a good thing since everyone has a camera on them these days. I still like taking pictures though, especially in transit.

Indoor pools: The longer I stay out of the pool the more I want to get back in. I even enjoy looking at pools, but more than anything I love the (chlorine) smell of pools.

Fenway Park: Since we’re on the subject of smells. I love going to games at Fenway (obviously), for reasons including but not limited to the smell. I’m 99.99% sure there’s nothing like it in the whole world.

Free Days: As much as I joke about turning medical appointments into mini vacations, and that does make things more fun in some ways, it’s just as good to have a day or two off now and then to do something fun, and probably pointless. I thought I’d miss my one “day off” a week, instead I look forward to the unexpected free days whenever I can.

What I Can’t Live Without:
My tablet: I swore right/left/sideways that I didn’t want to be one of those people with multiple computers. It didn’t make much sense to me since laptops have gotten so much smaller and lighter. That is until a friend lent me her iP@d over the summer because my laptop was temporally being used by someone else. I felt like I was missing an arm when my “rental period” was over.

Connection: I’m pretty content by myself but I love connection. It doesn’t really matter what sort of connection, although I’m particularly fond of girls’ weekends. I can spend days by myself without a problem but it’s good to be around people now and then.

Swimming: Somehow I always end up dropping the ball on swimming in the summer and picking it up again in the winter. Swimming is one of the few activities that can happen year round without much difficulty.

Hand sanitizer: I realize I just made myself look like the world’s largest germaphobe; I probably am one to an extent. My hands come in contact with a lot as a wheelchair user, especially in places like the grocery store or a parking lot. I’m also not that big on sticky things, especially if it makes my hands sticky. Hand sanitizer and I are very close friends.

Humor: I don’t even want to think about what would happen to me if I couldn’t find humor in life (or be around people who do the same). I’ll take laughing over crying, or laughing until I cry any day.