4 years ago a film, 65_RedRoses, was released. It was a film I had planned to see as close to its release as possible, which ended up being a few days ago (oops).
I’m not going to try and give you an honest review because the only thing I’m worse at than writing book reviews is movie reviews, so I won’t even bother.
I will tell you that it did not disappoint, however.
To get to know someone, who is a peer of sorts, even for a short time, is impactful, not to mention comforting in an odd way.
I got to know Eva through her blog before 65_RedRoses made its debut. She opened my eyes to a genetic condition I knew very little about, and somewhere along the way I shared more about myself and my health issues (physically mostly).
Through her (and her friends/followers) I discovered health related communities & set out to find one for CP.
As often as I find myself dismayed by the CP community I find myself impressed with the CF community just as often, which is a lot, if you were wondering. I often look to the CF community to see what they’ve done right, if anything, in the areas where I feel the CP community has fallen short.
Eva Markvoort isn’t just an example to the CF community; she’s an example to all health communities. She’s proof of what true passion and creativity (and the desire to keep busy) can do.
If I can leave an impact on this world that’s anything close to what Eva was able to accomplish then I’ll consider my life a success.
If you ever have the opportunity to see 65_RedRoses for yourself you should.
Here’s my favorite Eva footage. For those of you who aren’t theatre geeks this is called a “vocal mask.” I HATE doing them, but LOVE watching them.