Recently Katy wrote about feeling done with all the therapies her sons receive. Although we’re not in the same situation I can relate to how she feels.
There’s a quote from St. Lawrence (during his execution) that goes like this, “Turn me over. I’m done on this side.”
Here’s something about Cerebral Palsy that I’m not sure anyone comes right out to tell you:
You can never do enough therapy. Never. Ever. Never ever.
I’m pretty sure if there was a way to do it 24/7 a group of doctors and other medical professionals would come up reasons why it still isn’t enough.
It’s a no win. You can never be good enough, literally.
I’m pretty far removed from regimented PT but I’ve been trying to go to the gym (supervised by a trainer) ever since I was officially discharged from post-op PT.
Some people think living therapy free must be so liberating. In some ways it is. Sometimes it’s just as obnoxious.
Insurance doesn’t cover it so I’m forced to actually look at the bills.
Then there’s the matter of scheduling. Those early mornings suck, every week. Balancing appointments and having an average life isn’t easy.
Then there’s the most important issue, progress.
If you don’t feel like you’re making any & it’s costing you money it’s hard to find positives.
So do you continue?
I ask myself that regularly.
Usually when a bill is due.
Or a change comes along that I’m not that crazy about.
You can’t put a price on your well-being BUT it’s hard not to now and then.
I’ve been in some form of therapy or regular exercise for almost 30 years.
That’s a lot.
Sure it’s been just a few times a week & it’s not nearly as much as it could be, but it’s still a lot. Basic math points that out pretty clearly.
I know parents get sick of it (my parents have told me so in various ways) but I don’t think us “kids” get enough credit for wanting to be done with it.
It’s been part of our lives for a long as we remember but we see that there’s another world out there, especially as we get older.
It sucks to have to say, “I can’t, I have PT,” especially when friends don’t exactly “get it.”
It sucks to have to work it into the schedule as an adult.
Keeping up takes a lot of work.
Especially if you’re feeling D-O-N-E.